Researchers will also establish an OCD DNA repository that will be used to investigate genetic influences of this disorder.
Data that is routinely collected via the web-based REDCap tool for clinical purposes is entered into the registry. Information includes demographics, presenting symptoms, history and course, level of impairment, treatment specifics, and various clinical and subjective assessments. Dr. Evelyn Stewart is overseeing the work with the assistance of her clinical and research team from BC Children’s Hospital and the University of British Columbia.
Patients and their families receive access to an online questionnaire package that is separated into several sections. Some of the sections are completed by one parent about the child while some sections are for the child to do about him/herself (with help from the parents if needed). Other sections are about the parents and other family members. All questionnaires are a standard part of clinical care and there is no extra time required for research participation.
For the DNA repository, trained staff at BC Children’s Hospital Biobank will collect the samples at the end of the initial assessment.
The information gathered may indirectly improve the lives of those with OCD by increasing our understanding of how the illness progresses over time, and by helping to determine the genetic influences of this disorder. The information may also contribute to developing future treatment methods and/or research studies that may benefit those living with OCD. The collected and stored DNA samples will be used in the future to investigate which genes may be contributing to OCD and its clinical course, and which behaviours may be inherited by children from their parents.